“I want to do as much as I can before there’s a chance that I can’t do it anymore”: Supermilk’s Jake Popyura on the realities of his ALS diagnosis

Having been diagnosed with the rare and fatal motor neurone disease ALS (Amyotrophic lateral sclerosis) three years ago, Jake Popyura of indie-punks Supermilk reflects on his discovery, diagnosis, and now, determination to live amidst the release of his band’s third record, High Precision Ghosts. “I first noticed symptoms when we were recording the second Supermilk album [Four By Three], right at the end of 2020. I had gone home and was moving things, slipped on the stairs, and rolled my ankle badly. It took quite a long time to heal. Once it did heal, it was fine, I could go on runs and whatnot, but halfway through 2021, I noticed when laying in bed, my toe had started to twitch, like a phantom movement. From there, I noticed – when walking or running – ...

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